A novice runner from our Midlands region is fundraising to help find a cure for a genetic disorder which claimed the lives of baby twins from Bingham.
Lynda Price, a sales executive based at Bluebell in Bingham, will be racing for the first time at the Lincoln 10km Road Race on April 6th, having been touched by the heart-breaking story of one of the development’s residents.
Grandmother Lynn Earp was one of the first people to move to Bluebell, to be closer to her daughter Heidi who was expecting twins in early 2013.
But following a healthy birth, the family later discovered that little Max and Leo were suffering from a rare genetic disease, Spinal Muscular Atrophy. Tragically, it claimed the life of both boys at just six months old.
Lynda said: “This is a big challenge for me as I have never run in my life, but after signing up I asked Lynn and Heidi if I could help raise funds into supporting families affected by this awful disease. As a mum of grown-up children myself, the heartache must be beyond imaginable.”
Lynda is raising funds for the Jennifer Trust for Spinal Muscular Atrophy and Linden Homes has already donated £450. To add more, visit http://www.jtsma.org.uk/Lynda%20Price.
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